The Neuromuscular Diseases Unit of the Hospital de la Santa Creu i Sant Pau has just published a new article
Myasthenia Gravis
On the occasion of the National Day of Myasthenia Gravis, the Association of AMES patients has organized a series of informative activities to give visibility to this disease.
Myasthenia gravis (MG) is a rare neuromuscular disease characterized by patients having fatigability and weakness of the voluntary muscles. Weakness can affect any muscle including eye, limb, and vital muscles, responsible for respiratory function, swallowing, and phonation.
Due to the global health alert that exists these days in the face of the SARS-COV2 pandemic, a group of world experts in Myasthenia Gravis has developed a document of recommendations for patients and doctors. In the attached document you will find general recommendations for patients with Myasthenia Gravis and Eaton-Lambert Syndrome, indications for starting treatment and for patients in a clinical trial.
The Association of Patients AMES (Myasthenia Association of Spain) together with the Unit of Neuromuscular Diseases will celebrate, on the occasion of Rare Disease Day the XIII National Congress of Myasthenia Gravis. This meeting will take place on February 28 and 29 in the auditorium of the Hospital de Sant Pau. For two days myasthenia gravis neurologists, psychologists and patients will gather to share knowledge and experiences.
In the last weeks the unit of neuromuscular diseases in the Sant Pau Hospital, has published two scientific papers in the journal “Neurology”. The publications respond to three of the research lines developed by the unit