On the occasion of the Rare Diseases Day the 28th of February, informative and scientific activities are carried out in different cities. The topic chosen for this edition is “Approaching Patient Support Services”, where the accent is placed on the best access of patients to support services.
The Platform of Malalties Minoritàries, organizes the 12th Edition in Barcelona (Thursday 28 February, 9: 3014: 30h) in the Auditori Room of the Biomedical Research Park of Barcelona.
CIBERER, on the other hand, organizes the 8th edition of the “Research is moving forward” (Thursday, February 28, 10: 00-14: 30) at the CaixaForum Assembly Hall in Madrid. Researchers from the center and representatives of affected people will present their collaboration in the search for diagnoses and new therapies.
Platform Minoritàries Program
http://malaltiesminoritaries.org/portal1/images/content/Programa-Dia-Mundial-Malalties-Minoritaries-2019.pdf
CIBERER Program
https://www.ciberer.es/media/1216155/programa-dm-er-2019_final.pdf