{"id":1193,"date":"2018-03-14T16:16:49","date_gmt":"2018-03-14T15:16:49","guid":{"rendered":"https:\/\/www.neuromuscularbcn.org\/new-registry-of-mitochondrial-diseases\/"},"modified":"2018-03-14T16:16:49","modified_gmt":"2018-03-14T15:16:49","slug":"new-registry-of-mitochondrial-diseases","status":"publish","type":"post","link":"https:\/\/www.neuromuscularbcn.org\/en\/new-registry-of-mitochondrial-diseases\/","title":{"rendered":"New registry of Mitochondrial Diseases"},"content":{"rendered":"<p><img decoding=\"async\" class=\" wp-image-3059 alignleft\" src=\"https:\/\/www.neuromuscularbcn.org\/wp-content\/uploads\/2018\/03\/rem.png\" alt=\"\" width=\"401\" height=\"301\" \/>The new registry of Mitochondrial Diseases is ready to use. This new registry is the result of the collaboration of Hospital 12 de Octubre, Hospital de Sant Joan de D\u00e9u, Hospital de Sant Pau and the Association of Patients with Mitochondrial Diseases (AEPMI). They have defined the variables of this registry to include adult and paediatric patients with the aim of characterizing clinically and genetically patients with these pathologies. This registry is part of the project: National Registry of Neuromuscular Diseases NMD-ES (CIBERER), with 30 hospitals from Spain participating. The design was made with REDCap, a secure web application that facilitates the electronic capture of data for research.<\/p>\n<p>We invite you all to participate in this new project and we encourage you to introduce your patients&#8217; data.<\/p>\n<h4>HOW TO PARTICIPATE IN THE REGISTRY<\/h4>\n","protected":false},"excerpt":{"rendered":"<p>The new registry of Mitochondrial Diseases is ready to use.  [&#8230;]<\/p>\n","protected":false},"author":1,"featured_media":1194,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"inline_featured_image":false,"footnotes":""},"categories":[25,96],"tags":[110,111,99],"class_list":["post-1193","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-news","category-records","tag-mitochondrial-diseases","tag-patients-association","tag-registry"],"acf":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v27.2 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>New registry of Mitochondrial Diseases - Neuromuscular BCN<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.neuromuscularbcn.org\/en\/new-registry-of-mitochondrial-diseases\/\" \/>\n<meta property=\"og:locale\" content=\"en_US\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"New registry of Mitochondrial Diseases - Neuromuscular BCN\" \/>\n<meta property=\"og:description\" content=\"The new registry of Mitochondrial Diseases is ready to use. 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