{"id":1069,"date":"2019-02-27T06:57:09","date_gmt":"2019-02-27T05:57:09","guid":{"rendered":"https:\/\/www.neuromuscularbcn.org\/rare-diseases-day\/"},"modified":"2019-02-27T06:57:09","modified_gmt":"2019-02-27T05:57:09","slug":"rare-diseases-day","status":"publish","type":"post","link":"https:\/\/www.neuromuscularbcn.org\/en\/rare-diseases-day\/","title":{"rendered":"Rare Diseases Day"},"content":{"rendered":"

\"\"<\/p>\n

On the occasion of the Rare Diseases Day the 28th<\/sup> of February, informative and scientific activities are carried out in different cities. The topic chosen for this edition is “Approaching Patient Support Services”, where the accent is placed on the best access of patients to support services.<\/p>\n

The Platform of Malalties Minorit\u00e0ries<\/strong>, organizes the 12th Edition in Barcelona (Thursday 28 February, 9: 3014: 30h) in the Auditori Room of the Biomedical Research Park of Barcelona.<\/p>\n

CIBERER<\/strong>, on the other hand, organizes the 8th edition of the “Research is moving forward” (Thursday, February 28, 10: 00-14: 30) at the CaixaForum Assembly Hall in Madrid. Researchers from the center and representatives of affected people will present their collaboration in the search for diagnoses and new therapies.<\/span><\/p>\n

Platform Minorit\u00e0ries Program
\n<\/strong>http:\/\/malaltiesminoritaries.org\/portal1\/images\/content\/Programa-Dia-Mundial-Malalties-Minoritaries-2019.pdf<\/a>
\n<\/strong><\/p>\n

CIBERER\u00a0Program
\n<\/strong>https:\/\/www.ciberer.es\/media\/1216155\/programa-dm-er-2019_final.pdf<\/a>
\n<\/strong><\/p>\n","protected":false},"excerpt":{"rendered":"

On the occasion of the Rare Diseases Day the 28th […]<\/p>\n","protected":false},"author":1,"featured_media":1070,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"inline_featured_image":false,"footnotes":""},"categories":[25,42],"tags":[54],"class_list":["post-1069","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-news","category-uncategorized","tag-rare-diseases"],"acf":[],"yoast_head":"\nRare Diseases Day - Neuromuscular BCN<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.neuromuscularbcn.org\/en\/rare-diseases-day\/\" \/>\n<meta property=\"og:locale\" content=\"en_US\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Rare Diseases Day - Neuromuscular BCN\" \/>\n<meta property=\"og:description\" content=\"On the occasion of the Rare Diseases Day the 28th [...]\" \/>\n<meta property=\"og:url\" content=\"https:\/\/www.neuromuscularbcn.org\/en\/rare-diseases-day\/\" \/>\n<meta property=\"og:site_name\" content=\"Neuromuscular BCN\" \/>\n<meta property=\"article:published_time\" content=\"2019-02-27T05:57:09+00:00\" \/>\n<meta property=\"og:image\" content=\"https:\/\/www.neuromuscularbcn.org\/wp-content\/uploads\/2025\/03\/Programa-Dia-Mundial-Malalties-Minoritaries-2019-scaled-1.jpg\" \/>\n\t<meta property=\"og:image:width\" content=\"1813\" \/>\n\t<meta property=\"og:image:height\" content=\"2560\" \/>\n\t<meta property=\"og:image:type\" content=\"image\/jpeg\" \/>\n<meta name=\"author\" content=\"Neuromuscular BCN\" \/>\n<meta name=\"twitter:card\" content=\"summary_large_image\" \/>\n<meta name=\"twitter:creator\" content=\"@NMDSantPau\" \/>\n<meta name=\"twitter:site\" content=\"@NMDSantPau\" \/>\n<meta name=\"twitter:label1\" content=\"Written by\" \/>\n\t<meta name=\"twitter:data1\" content=\"Neuromuscular BCN\" \/>\n\t<meta name=\"twitter:label2\" content=\"Est. reading time\" \/>\n\t<meta name=\"twitter:data2\" content=\"1 minute\" \/>\n<script type=\"application\/ld+json\" class=\"yoast-schema-graph\">{\"@context\":\"https:\/\/schema.org\",\"@graph\":[{\"@type\":\"Article\",\"@id\":\"https:\/\/www.neuromuscularbcn.org\/en\/rare-diseases-day\/#article\",\"isPartOf\":{\"@id\":\"https:\/\/www.neuromuscularbcn.org\/en\/rare-diseases-day\/\"},\"author\":{\"name\":\"Neuromuscular BCN\",\"@id\":\"https:\/\/www.neuromuscularbcn.org\/en\/#\/schema\/person\/df58c3cf577e97c7ca8612523120f35f\"},\"headline\":\"Rare Diseases Day\",\"datePublished\":\"2019-02-27T05:57:09+00:00\",\"mainEntityOfPage\":{\"@id\":\"https:\/\/www.neuromuscularbcn.org\/en\/rare-diseases-day\/\"},\"wordCount\":144,\"commentCount\":0,\"publisher\":{\"@id\":\"https:\/\/www.neuromuscularbcn.org\/en\/#organization\"},\"image\":{\"@id\":\"https:\/\/www.neuromuscularbcn.org\/en\/rare-diseases-day\/#primaryimage\"},\"thumbnailUrl\":\"https:\/\/www.neuromuscularbcn.org\/wp-content\/uploads\/2025\/03\/Programa-Dia-Mundial-Malalties-Minoritaries-2019-scaled-1.jpg\",\"keywords\":[\"rare diseases\"],\"articleSection\":[\"News\"],\"inLanguage\":\"en-US\",\"potentialAction\":[{\"@type\":\"CommentAction\",\"name\":\"Comment\",\"target\":[\"https:\/\/www.neuromuscularbcn.org\/en\/rare-diseases-day\/#respond\"]}]},{\"@type\":\"WebPage\",\"@id\":\"https:\/\/www.neuromuscularbcn.org\/en\/rare-diseases-day\/\",\"url\":\"https:\/\/www.neuromuscularbcn.org\/en\/rare-diseases-day\/\",\"name\":\"Rare Diseases Day - 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