{"id":861,"date":"2023-06-19T10:18:25","date_gmt":"2023-06-19T08:18:25","guid":{"rendered":"https:\/\/www.neuromuscularbcn.org\/unzue-i-sant-pau-un-equip-contra-lela\/"},"modified":"2025-04-30T07:06:17","modified_gmt":"2025-04-30T05:06:17","slug":"unzue-i-sant-pau-un-equip-contra-lela","status":"publish","type":"post","link":"https:\/\/www.neuromuscularbcn.org\/ca\/unzue-i-sant-pau-un-equip-contra-lela\/","title":{"rendered":"Unzu\u00e9 i Sant Pau, un equip contra l’ELA"},"content":{"rendered":"\n

En el marc del Dia Mundial contra l’ELA, el 20 de juny a les 12 h tindr\u00e0 lloc al Recinte Modernista de Sant Pau un acte protagonitzat per Juan Carlos Unzu\u00e9 en el que l’exporter del FCB, afectat per Esclerosi Lateral Amiotr\u00f2fica, parlar\u00e0 sobre la malaltia i les seves afectacions amb el Dr. Ricard Rojas, neur\u00f2leg i coordinador de la Unitat Funcional d’ELA de Sant Pau.<\/p>\n\n\n

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El dia 21 de juny se celebra el Dia Mundial contra l’ELA, una jornada impulsada per associacions de pacients afectats per Esclerosi Lateral Amiotr\u00f2fica de tot el m\u00f3n per visibilitzar aquesta malaltia degenerativa del sistema nervi\u00f3s que afecta a m\u00e9s de 4.000 persones en tot l’Estat.<\/p>\n\n\n\n

L’any 1882 es va crear a Sant Pau el primer Servei de Neurologia de Catalunya i d’Espanya, i des de llavors l’Hospital ha estat un centre de refer\u00e8ncia i capdavanter en aquesta especialitat, l’equip del qual tracta, entre d\u2019altres patologies, els pacients diagnosticats d’ELA. La Unitat Funcional d\u2019ELA de Sant Pau est\u00e0 reconeguda nacionalment i internacional i \u00e9s la unitat de Refer\u00e8ncia pels afectats d\u2019aquesta malaltia a tot Catalunya.<\/p>\n\n\n\n

Des del dia del seu diagn\u00f2stic a l’Hospital de Sant Pau, Juan Carlos Unzu\u00e9, exporter del FCB, es va convertir en una de les cares m\u00e9s visibles de l’ELA. Es va imposar la missi\u00f3 de conscienciar a la ciutadania de les dificultats que comporta conviure amb l’ELA, no nom\u00e9s en el pla f\u00edsic sin\u00f3 tamb\u00e9 el social, el personal i l’econ\u00f2mic.<\/p>\n\n\n\n

L\u2019Hospital de Sant Pau tamb\u00e9 vol donar suport a la lluita contra l’ELA, i per aix\u00f2 organitza un acte en el qual Juan Carlos Unzu\u00e9 conversar\u00e0 amb el seu metge, el Dr. Ricard Rojas, neur\u00f2leg, investigador i coordinador de la Unitat Funcional d’ELA de Sant Pau. Entre altres temes, es tractaran q\u00fcestions com la manera d’enfrontar el diagn\u00f2stic, com es desenvolupa el seu dia a dia o com afecta l\u2019ELA a l’entorn m\u00e9s proper. <\/p>\n\n\n\n

L\u2019acte el presentar\u00e0 la periodista Cristina Puig i comptar\u00e0 amb la participaci\u00f3 d\u2019Esther Sell\u00e9s, directora de la Fundaci\u00f3 Catalana d’ELA Miquel Valls.<\/p>\n\n\n\n

L’esdeveniment tindr\u00e0 lloc el 20 de juny a les 12\u202fh a la Sala Francesc Camb\u00f3 del Recinte Modernista de l’Hospital de Sant Pau (carrer Sant Antoni Maria Claret, 167). L’entrada \u00e9s lliure, gratu\u00efta i les places s\u00f3n limitades. Per inscriure’s nom\u00e9s cal omplir el formulari que trobareu en aquest enlla\u00e7<\/a>.<\/strong><\/p>\n","protected":false},"excerpt":{"rendered":"

En el marc del Dia Mundial contra l’ELA, el 20 de juny a les 12 h tindr\u00e0 lloc al Recinte Modernista de Sant Pau un acte protagonitzat per Juan Carlos Unzu\u00e9 en el que l’exporter del FCB, afectat per Esclerosi Lateral Amiotr\u00f2fica, parlar\u00e0 sobre la malaltia i les seves afectacions amb el Dr. Ricard Rojas, neur\u00f2leg i coordinador de la Unitat Funcional d’ELA de Sant Pau. El dia 21 de juny se celebra el […]<\/p>\n","protected":false},"author":1,"featured_media":862,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"inline_featured_image":false,"footnotes":""},"categories":[221],"tags":[],"class_list":["post-861","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-noticies-ca"],"acf":[],"yoast_head":"\nUnzu\u00e9 i Sant Pau, un equip contra l'ELA - Neuromuscular BCN<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.neuromuscularbcn.org\/ca\/unzue-i-sant-pau-un-equip-contra-lela\/\" \/>\n<meta property=\"og:locale\" content=\"ca_ES\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Unzu\u00e9 i Sant Pau, un equip contra l'ELA - Neuromuscular BCN\" \/>\n<meta property=\"og:description\" content=\"En el marc del Dia Mundial contra l’ELA, el 20 de juny a les 12 h tindr\u00e0 lloc al Recinte Modernista de Sant Pau un acte protagonitzat per Juan Carlos Unzu\u00e9 en el que l’exporter del FCB, afectat per Esclerosi Lateral Amiotr\u00f2fica, parlar\u00e0 sobre la malaltia i les seves afectacions amb el Dr. Ricard Rojas, neur\u00f2leg i coordinador de la Unitat Funcional d’ELA de Sant Pau. 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