{"id":1073,"date":"2019-02-27T06:57:09","date_gmt":"2019-02-27T05:57:09","guid":{"rendered":"https:\/\/www.neuromuscularbcn.org\/dia-mundial-de-les-malalties-rares\/"},"modified":"2025-04-30T07:06:18","modified_gmt":"2025-04-30T05:06:18","slug":"dia-mundial-de-les-malalties-rares","status":"publish","type":"post","link":"https:\/\/www.neuromuscularbcn.org\/ca\/dia-mundial-de-les-malalties-rares\/","title":{"rendered":"Dia Mundial de les Malalties Rares"},"content":{"rendered":"

\"\"<\/p>\n

Amb motiu del Dia Mundial de les Malalties Rares <\/strong>el 28 de Febrer, <\/strong>\u00a0es realitzen en diferents ciutats activitats divulgatives i cient\u00edfiques. El tema escollit per a aquesta edici\u00f3 \u00e9s “Apropant els Serveis d’ajuda als pacients”, on es posa l’accent en el millor acc\u00e9s als diferents Serveis de suport als pacients.<\/p>\n

La Plataforma de Malalties Minorit\u00e0ries<\/strong>, organitza la 12a Edici\u00f3 a Barcelona (Dijous 28 de Febrer, 9: 3014: 30h) a la Sala Auditori del Parc de Recerca Biom\u00e8dica de Barcelona.<\/p>\n

CIBERER<\/strong>, per la seva banda organitza la 8a edici\u00f3 de la Jornada “Recerca \u00e9s avan\u00e7ar” (Dijous 28 de Febrer, 10: 00-14: 30h) a la Sala d’Actes del CaixaForum a Madrid. Investigadors del centre i representants de persones afectades exposaran la seva col\u00b7laboraci\u00f3 en la recerca de diagn\u00f2stics i noves ter\u00e0pies.<\/p>\n

Programa Plataforma Minorit\u00e0ries
\n<\/strong>http:\/\/malaltiesminoritaries.org\/portal1\/images\/content\/Programa-Dia-Mundial-Malalties-Minoritaries-2019.pdf<\/a>
\n<\/strong><\/p>\n

Programa CIBERER
\n<\/strong>https:\/\/www.ciberer.es\/media\/1216155\/programa-dm-er-2019_final.pdf<\/a>
\n<\/strong><\/p>\n","protected":false},"excerpt":{"rendered":"

Amb motiu del Dia Mundial de les Malalties Rares el 28 de Febrer, \u00a0es realitzen en diferents ciutats activitats divulgatives i cient\u00edfiques. El tema escollit per a aquesta edici\u00f3 \u00e9s “Apropant els Serveis d’ajuda als pacients”, on es posa l’accent en el millor acc\u00e9s als diferents Serveis de suport als pacients. La Plataforma de Malalties Minorit\u00e0ries, organitza la 12a Edici\u00f3 a Barcelona (Dijous 28 de Febrer, 9: 3014: 30h) a la Sala Auditori del […]<\/p>\n","protected":false},"author":1,"featured_media":1074,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"inline_featured_image":false,"footnotes":""},"categories":[221],"tags":[55,78],"class_list":["post-1073","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-noticies-ca","tag-malalties-minoritaries","tag-malalties-rares"],"acf":[],"yoast_head":"\nDia Mundial de les Malalties Rares - Neuromuscular BCN<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.neuromuscularbcn.org\/ca\/dia-mundial-de-les-malalties-rares\/\" \/>\n<meta property=\"og:locale\" content=\"ca_ES\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Dia Mundial de les Malalties Rares - Neuromuscular BCN\" \/>\n<meta property=\"og:description\" content=\"Amb motiu del Dia Mundial de les Malalties Rares el 28 de Febrer, \u00a0es realitzen en diferents ciutats activitats divulgatives i cient\u00edfiques. 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