{"id":375,"date":"2025-03-27T06:24:19","date_gmt":"2025-03-27T05:24:19","guid":{"rendered":"https:\/\/www.neuromuscularbcn.org\/?page_id=375"},"modified":"2025-04-29T14:34:01","modified_gmt":"2025-04-29T12:34:01","slug":"ern","status":"publish","type":"page","link":"https:\/\/www.neuromuscularbcn.org\/ca\/centre-acreditat\/ern\/","title":{"rendered":"ERN"},"content":{"rendered":"

\"\"<\/p>\n

La unitat de Malalties Neuromusculars (MNM) forma part de la xarxa europea d\u2019aquestes malalties des del seu llan\u00e7ament al mar\u00e7 del 2017. Aquesta xarxa, anomenada EURO-NMD, est\u00e0 formada per hospitals que representen 61 centres d\u2019excel\u00b7l\u00e8ncia de 14 estats membres de la Uni\u00f3 Europea. La creaci\u00f3 d\u2019aquestes xarxes respon a la directiva europea 2011\/24 \/ EU sobre el dret d\u2019assist\u00e8ncia sanit\u00e0ria transfronterera.<\/p>\n

Els objectius principals de la xarxa EURO-NMD s\u00f3n:<\/p>\n

    \n
  1. Millorar la qualitat i equitat de l\u2019assist\u00e8ncia sanit\u00e0ria dels pacients amb malalties neuromusculars minorit\u00e0ries en tots els pa\u00efsos de la Uni\u00f3 Europea amb resultats apropiats per a cada \u00e0rea de malalties neuromusculars.<\/li>\n
  2. Fer que el millor coneixement i experi\u00e8ncia en MNM estigui disponible per als professionals de la salut i pacients de tota Europa per assegurar que tan professionals com pacients estan ben informats i actualitzats sobre les millors opcions d\u2019intervenci\u00f3 i atenci\u00f3.<\/li>\n
  3. Assolir un millor i m\u00e9s r\u00e0pid diagn\u00f2stic en els afectats per MNM utilitzant t\u00e8cniques d\u2019\u00faltima generaci\u00f3.<\/li>\n
  4. Proporcionar un conjunt d\u2019eines de recursos combinats basats en l\u2019experi\u00e8ncia de tota Europa que donaran suport als serveis cl\u00ednics (diagn\u00f2stic i atenci\u00f3), investigaci\u00f3, formaci\u00f3 i educaci\u00f3 per als interessats.<\/li>\n
  5. Proporcionar serveis altament especialitzats d\u2019alta qualitat per ajudar els cl\u00ednics amb un alt nombre de pacients amb MNM o amb falta de tecnologia o experi\u00e8ncia.<\/li>\n<\/ol>\n

    La Unitat t\u00e9 representants en cadascun dels grups especialitzats en diferents malalties neuromusculars: malalties musculars, malalties de la uni\u00f3 neuromuscular, malalties de nervi perif\u00e8ric i malalties de neurona motora.<\/p>\n

    La Unitat participa tamb\u00e9 en grups transversals especialitzats: proves d\u2019imatge neuromuscular, neuropatologia, gen\u00e8tica i en els comit\u00e8s dedicats a educaci\u00f3 i investigaci\u00f3.<\/p>\n

    M\u00e9s informaci\u00f3:
    \n<\/strong>http:\/\/ern-euro-nmd.eu\/ern\/<\/a><\/p>\n<\/div><\/div><\/div><\/div><\/div>\n","protected":false},"excerpt":{"rendered":"","protected":false},"author":1,"featured_media":0,"parent":371,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"100-width.php","meta":{"_acf_changed":false,"inline_featured_image":false,"footnotes":""},"class_list":["post-375","page","type-page","status-publish","hentry"],"acf":[],"yoast_head":"\nERN - Neuromuscular BCN<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.neuromuscularbcn.org\/ca\/centre-acreditat\/ern\/\" \/>\n<meta property=\"og:locale\" content=\"ca_ES\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"ERN - Neuromuscular BCN\" \/>\n<meta property=\"og:url\" content=\"https:\/\/www.neuromuscularbcn.org\/ca\/centre-acreditat\/ern\/\" \/>\n<meta property=\"og:site_name\" content=\"Neuromuscular BCN\" \/>\n<meta property=\"article:modified_time\" content=\"2025-04-29T12:34:01+00:00\" \/>\n<meta property=\"og:image\" content=\"https:\/\/www.neuromuscularbcn.org\/wp-content\/uploads\/2025\/04\/ERN_logo_nmsp-400x376-1.png\" \/>\n<meta name=\"twitter:card\" content=\"summary_large_image\" \/>\n<meta name=\"twitter:site\" content=\"@NMDSantPau\" \/>\n<meta name=\"twitter:label1\" content=\"Temps estimat de lectura\" \/>\n\t<meta name=\"twitter:data1\" content=\"7 minuts\" \/>\n<script type=\"application\/ld+json\" class=\"yoast-schema-graph\">{\"@context\":\"https:\/\/schema.org\",\"@graph\":[{\"@type\":\"WebPage\",\"@id\":\"https:\/\/www.neuromuscularbcn.org\/ca\/centre-acreditat\/ern\/\",\"url\":\"https:\/\/www.neuromuscularbcn.org\/ca\/centre-acreditat\/ern\/\",\"name\":\"ERN - 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